Philly day one.
Today was intake and consent day here.
Lots of finding our ways and navigating new things.
Lots of asking questions and listening to all the details.
Lots. And lots. And lots.
Today we got to officially sign the papers to enroll Brady as one of the 100 to be apart of the CHOP Clinical HuCart Trial.
We feel so incredibly excited to have the opportunity for Brady to be a part of this new age of treatment knowing that just ten years ago a treatment like this would have been out of reach. Meaning our options for saving Brady would have been nonexistent.
But today incredible things are happening.
Today we feel hope. Not only from this trial, but because of more great news.
Today Brady’s one in a million level test only showed 10 leukemia cells per million.
This means we are extremely optimistic that Brady can make it to therapy in October without the need of any additional treatments.
Tonight the boys walked to the local store to grab a few things while I grabbed a much needed nap (this nervous momma was up most of the night) and now they are watching the Crew and FaceTiming friends.
Tomorrow is another long day in Philly. Our day will start back at CHOP at 6am where they will place another central line. This one will be on the left side of his neck and have a double lumen. Next, he will head to have his T cells harvested out.
All in all it will be about a 10ish hour day.
Whew. It’s a lot.
But we are grateful. Grateful for each and every piece that has gone into today and the days ahead. Grateful for each of you battling with us. Grateful for the grace and mercy to battle another day. Grateful for the hope in what the Lord is working out ahead of us.
“You have armed me with strength for the battle.”